News releases from Cystic Fibrosis Foundation
CF Foundation Announces 2021 Impact Grant Recipients
July 26, 2021
The Cystic Fibrosis Foundation today announced the recipients of its sixth annual Impact Grants, which provide up to $10,000 of funding per year for up to two years to individuals and nonprofit...
Today, the Cystic Fibrosis Foundation affirmed its support for the PASTEUR Act, a bipartisan proposal that, if passed, will support the development of new antibiotics and promote appropriate use of...
Today, the Cystic Fibrosis Foundation announced the initiation of the HERO-2: Home Reported Outcomes Study, a first-of-its-kind, at-home observational study that aims to characterize the range of...
Today, the Cystic Fibrosis Foundation announced three new research awards as part of its Path to a Cure initiative to accelerate the development of treatments for the underlying cause of cystic...
CF Foundation Invests Up to $8.4M in SpliSense for the Development of Potential Rare Mutation Therapy
May 13, 2021
Today, the Cystic Fibrosis Foundation announced that it will invest up to $8.4 million in SpliSense’s Series B funding round to develop an antisense oligonucleotide (ASO) therapy for people with cystic...
CF Foundation Awards Up to $2.17 Million to Beyond Air® to Develop Portable NTM Treatment
February 16, 2021
The CF Foundation announced it has awarded up to $2.17M to Beyond Air® to support development of a portable inhaled nitric oxide treatment for NTM.
CF Foundation Awards Up to $2M to Eloxx Pharmaceuticals for Additional Support of Phase 2 Clinical Studies of Potential Therapy for Nonsense Mutations
January 13, 2021
Today, the Cystic Fibrosis Foundation announced a new award of up to $2 million to Eloxx Pharmaceuticals Inc. to support the global Phase 2 clinical program of ELX-02, a potential therapy to treat...
First Global Study of COVID-19 in Children With Cystic Fibrosis Reports Reassuring Outcomes
December 08, 2020
Today, the Cystic Fibrosis Registry Global Harmonization Group, including the Cystic Fibrosis Foundation, published findings from the first global study on the impact of COVID-19 on children with...
CF Foundation Awards Up to $3.3M to Polyphor for Inhaled Version of Antibiotic to Treat Pseudomonas
November 24, 2020
Today, the Cystic Fibrosis Foundation announced it has awarded up to $3.3 million to Polyphor AG to develop an inhaled version of murepavadin, an antibiotic that targets multi-drug resistant...
Today, the Cystic Fibrosis Registry Global Harmonization Group, including the CF Foundation, published in the Journal of Cystic Fibrosis updated data on the impact of COVID-19 on people with cystic...
CF Foundation Commits up to $14 Million in Funding to Expand Research Agreement With Synspira Therapeutics
October 20, 2020
Today, the Cystic Fibrosis Foundation announced it is expanding its research collaboration with Synspira Therapeutics Inc., committing up to $14 million in additional funding to develop a non-porcine...
Cystic Fibrosis Foundation and Longwood Fund Launch CF Incubator
August 05, 2020
Cystic Fibrosis Foundation Awards Grants to Four Community Organizations Dedicated to Empowering People With CF
July 27, 2020
The Cystic Fibrosis Foundation today announced the recipients of its fifth annual Impact Grants, which provide up to $10,000 per year of funding to individuals and organizations within the cystic...
CF Foundation Invests up to $14M in Effort to Solve Key Challenges to Gene Delivery in Cystic Fibrosis
June 17, 2020
Today the Cystic Fibrosis Foundation announced data from a collaborative, international effort to understand the impact of COVID-19 on people with cystic fibrosis, a genetic disease that impacts the...
CF Foundation Announces up to $5M Award to Support First-Ever Controlled Clinical Study of Phage Therapy in Cystic Fibrosis
March 18, 2020
Today, the Cystic Fibrosis Foundation announced a new research award of up to $5 million to Armata Pharmaceuticals to conduct a Phase 1b/2 clinical trial to test the safety and tolerability of...
Cystic Fibrosis Foundation Launches $500 Million Path to a Cure
October 30, 2019
Today the Cystic Fibrosis Foundation unveiled its Path to a Cure, an ambitious research agenda to deliver treatments for the underlying cause of the disease and a cure for every person with cystic...
Cystic Fibrosis Foundation Statement on FDA Approval of TRIKAFTA, the First Triple-Combination Therapy for the Most Common CF Mutation
October 21, 2019
The Cystic Fibrosis Foundation released a statement on FDA approval of TRIKAFTA, the first triple-combination therapy for the most common CF mutation
Cystic Fibrosis Foundation Awards Grants to Five Organizations Dedicated to Empowering the CF Community
July 22, 2019
The Cystic Fibrosis Foundation today announced the recipients of its fourth annual Impact Grants, which provide funding to people with cystic fibrosis (CF) who are leading unique projects in their...
Preston W. Campbell, President and CEO of the Cystic Fibrosis Foundation to Retire; Michael P. Boyle, MD, Appointed as Successor Effective January 2020
May 21, 2019
Today the Cystic Fibrosis Foundation announced that President and CEO Preston W. Campbell, MD, plans to retire at the end of 2019. The Foundation’s Board of Trustees has selected Michael P. Boyle, MD,...
The Cystic Fibrosis Foundation announced today that it will commit at least $100 million over the next five years as part of a sweeping effort to address the chronic and intractable infections that are...
Cystic Fibrosis Foundation Awards Grants to Eight Community Programs
October 10, 2018
The Cystic Fibrosis Foundation today announced the recipients of its third annual Impact Grants, which provide funding to individuals affected by cystic fibrosis (CF) who are leading unique projects in...
17 Patient Advocacy Organizations: Congress Must Act to Stabilize Insurance Markets After Repealing Individual Mandate
December 20, 2017
As the Tax Cuts and Jobs Act awaits the president’s signature after passage by Congress today, a group of 17 non-partisan patient and consumer organizations issued the following statement:
12 Patient and Consumer Groups: CBO Confirms That Alexander-Murray Bill is Not a Fix for Repealing the Individual Mandate
November 30, 2017
Yesterday, the Congressional Budget Office (CBO) sent a letter to Senator Patty Murray (D-WA) indicating that the Alexander-Murray Bipartisan Health Care Stabilization Act would not mitigate the...
Cystic Fibrosis Foundation Announces Recipients of 2017 Impact Grants to Programs that Serve People with CF and Their Families
November 21, 2017
The Cystic Fibrosis Foundation has announced the recipients of its second annual Impact Grants. The Impact Grants Program provides funding to unique projects by and for people with cystic fibrosis (CF)...
Update: Senator Susan Collins to be Honored by Cystic Fibrosis Foundation at “Take a Breath” Social
November 01, 2017
On Friday, November 3, U.S. Senator Susan Collins (R-ME) will be joining the Cystic Fibrosis Foundation for their annual “Take a Breath” social to receive the CF Foundation Breath of Life legislator...
Eighteen Patient, Provider, and Consumer Groups: CBO Report Shows Bipartisan Health Care Stabilization Act Would Lower Premiums, Maintain Coverage for Americans
October 27, 2017
Today, a non-partisan group of 18 patient, provider, and consumer groups renewed calls for Congress to act on the Bipartisan Health Care Stabilization Act of 2017 in light of Wednesday’s Congressional...
Cystic Fibrosis Foundation to Host Over 4,400 Researchers and Clinicians in Indianapolis Nov. 2–4 to Advance Search for a Cure
October 26, 2017
Health Insurance Changes Could Put Meaningful Health Coverage Out of Reach for Patients
October 12, 2017
An executive order issued today by President Trump would encourage association health plans to enter the insurance market and change the rules governing the length and renewability of short-term...
10 Patient Advocacy Organizations Applaud Committee Focus on Market Stabilization, Urge Continued Protections for Patients
September 07, 2017
The undersigned organizations, representing millions of American patients, issued the following statement following a series of hearings this week in the U.S. Senate Health, Education, Labor, and...